Tis said that fibromyalgia is the most underappreciated condition by those who do not have it.
I Have been to many courses and fibromyalgia groups. If you look around the room almost everyone looks so healthy, smiling and with little or no wrinkles; all in all, a very attractive bunch of women and men. There is the fireman, 6 1/5 feet tall, a real calender hunk, arms as big around as most womans’ waists. He had to quit the fire dept. because of chronic fatigue syndrome (CFS).
Who would ever guess all in the room have a very debilitating condition or conditions and suffer a great deal of very severe pain. Actually most of them suffer from more than fibromyalgia. Some of the most common conditions are chronic fatigue
syndrome, sleep apnea, asthma, leaky gut syndrome, multiple chemical sensitivities, etc.
Fibromyalgia has been considered a disability in Canada since 2007 . Many with fibromyalgia do their best to continue working for as long as they can and consider a disability program the very last resort. Also most fibromyalgia sufferers have been very active, fun loving, and joyful people, always on the go, helping others. Now, some days would be very productive, racing happily about, cleaning, cooking, doing repairs on the house, out for a hike or bicycle ride, Then it would be like hitting a brick wall, it even hurts like hitting a brick wall. Within an instant all energy is gone, all muscles are shaking, burning hot. Crash and burn are in full mode. As the years go on the crash and burn times happen more frequently and last for a longer duration.
Sad but true, for the last 4 years or so many children are known to have fibromyalgia. The centre for severely disabled children in Toronto, Canada has between 50 and 70 children with this condition every month as of 2012.
My description of a bad fibromyalgia day:
It is like having piano wires in every muscle, pulling tight, cutting into the flesh and burning hot.
I could be in bed not able to get up. It feels like I have a anvil used for shaping horse shoes sitting on my chest. It is very difficult to breathe and almost impossible to get up. Only sheer desperation gets me to the bathroom, mostly on time.
I purchased a mechanics stool to get around my apartment when I can not walk. My mind often fogs over and I cannot think or get the correct words out. We call it fibro fog. The pain can be so intense that there is no quality of life. The following quote sums it up quite well.
“I sent my soul through the invisible
some letter of the afterlife to spell
and by and by my soul returned to me and said
I myself, am heaven and hell ”
Upon reflection, I believe that I have had fibromyalgia far longer than I realized. If I had not been riding horses back then I am sure I would have had much more severe symptoms then. Even today, mainly for MS horseback riding is highly recommended. Why horseback riding, it shakes up every part of the body, muscles, and most importantly helps the lymphatic system flush out any blockages.
I wrote this quite a few years ago
To the mothers and fathers who
Were never taught to be parents
And left their children to be the adults
Angry drunken rages
Child and spouse, beaten and battered
Anger cannot express the pain
Of childhood lost
To raising parents
Children. . . grand children
The doctor calls my condition
Chronic fatigue syndrome
An apt name for 60 years of stress
How odd, for someone who is thirty-six.